Development of a disease-specific questionnaire to measure health-related quality of life in liver transplant recipients

Development of a disease specific questionnaire to measure health related quality of life in patients with chronic liver disease.

BACKGROUND AND AIMS To develop and assess a disease specific instrument for measuring health related quality of life (HRQL) in patients with chronic liver disease (CLD). METHODS Based on responses from 60 patients with chronic liver disease, from 20 liver experts, and from a Medline search of the literature, items potentially affecting the HRQL of these patients were identified. A separate sa...

The Huntington's Disease health-related Quality of Life questionnaire (HDQoL): a disease-specific measure of health-related quality of life

Huntington's disease (HD) is a genetic neurodegenerative disorder characterized by motor, cognitive and psychiatric disturbances, and yet there is no disease-specific patient-reported health-related quality of life outcome measure for patients. Our aim was to develop and validate such an instrument, i.e. the Huntington's Disease health-related Quality of Life questionnaire (HDQoL), to capture t...

health-related quality of life in kidney transplant recipients

Health-Related Quality of Life in Kidney Transplant Recipients

I have read with interest the paper of Tayyebi et al. (1) and I am impressed by the efforts that the authors made to elaborate the Iranian version of the kidney transplant questionnaire (KTQ-25) and I would like to congratulate the authors for the effect of their work. Renal transplantation is a method that improves both patient survival and quality of life, and is cost-effective in patients wi...

Adherence and health-related quality of life in adolescent liver transplant recipients.

Adolescence is a particularly high-risk period for non-adherence with post-transplant medical regimens. There remains a lack of research investigating factors related to non-adherence in adolescent LT recipients. The present study empirically assessed the relationship between adherence and HRQOL in adolescent LT recipients. Participants included 25 adolescents (mean = 15.1 yr, range 12-17.9) an...